Article Abstract

Improving medical care and prevention in adults with congenital heart disease—reflections on a global problem—part II: infective endocarditis, pulmonary hypertension, pulmonary arterial hypertension and aortopathy

Authors: Rhoia Neidenbach, Koichiro Niwa, Oeztekin Oto, Erwin Oechslin, Jamil Aboulhosn, David Celermajer, Joerg Schelling, Lars Pieper, Linda Sanftenberg, Renate Oberhoffer, Fokko de Haan, Michael Weyand, Stephan Achenbach, Christian Schlensak, Dirk Lossnitzer, Nicole Nagdyman, Yskert von Kodolitsch, Hans-Carlo Kallfelz, David Pittrow, Ulrike M. M. Bauer, Peter Ewert, Thomas Meinertz, Harald Kaemmerer


Despite relevant residua and sequels, follow-up care of adults with congenital heart disease (ACHD) is too often not performed by/in specialized and/or certified physicians or centers although major problems in the long-term course may develop. The most relevant encompass heart failure, cardiac arrhythmias, heart valve disorders, pulmonary vascular disease, infective endocarditis (IE), aortopathy and non-cardiac comorbidities. The present publication emphasizes current data on IE, pulmonary and pulmonary arterial hypertension and aortopathy in ACHD and underlines the deep need of an experienced follow-up care by specialized and/or certified physicians or centers, as treatment regimens from acquired heart disease can not be necessarily transmitted to CHD. Moreover, the need of primary and secondary medical prevention becomes increasingly important in order to reduce the burden of disease as well as the socioeconomic burden and costs in this particular patient group.